Protocol For Collecting Data On Patients With Childhood Cancer
St. Jude Children's Research Hospital
Summary
Progress in the development of curative therapy for pediatric malignancies has resulted in increasing numbers of long-term childhood cancer survivors. This protocol is a means to provide continuing review of outcome and late toxicity for all patients actively being treated and previously treated for childhood cancer at St. Jude Children's Research Hospital.
Description
Previously at St. Jude Children's Research Hospital, monitoring and reporting of late treatment sequelae developing in protocol participants have occurred at the discretion of individual investigators. A formal mechanism for coordinating long-term follow-up data collection of late cancer-related toxicity did not exist within the institution, nor did a central data repository to facilitate correlation of clinical and treatment factors predisposing to toxicity. Central coordination of late effects monitoring and reporting at St. Jude offers the potential benefit of facilitating timely communicat…
Eligibility
- Age range
- Not specified
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * All St Jude patients actively being followed or treated for childhood cancer Exclusion Criteria: * St. Jude consult only patients * St. Jude patients permanently discharged from care and follow-up Permanently discharged patients include patients who have electively transferred their oncologic care to another institution, those who are noncompliant with recommended follow-up or those leaving the institution against medical advice. * Patients referred to St. Jude for limited care on phase 1 protocol.
Interventions
- OtherData Collection
Continuing review of outcomes and late toxicities
Location
- St. Jude Children's Research HospitalMemphis, Tennessee