Study detail
Recruiting
ELEVATE, a Global Observational Longitudinal Prospective Registry of Patients With Acute Hepatic Porphyria (AHP)
Alnylam Pharmaceuticals
Summary
This global patient registry is being conducted to characterize the natural history and real-world clinical management of patients with AHP, and to further characterize the real-world safety and effectiveness of givosiran and other approved AHP therapies.
Eligibility
- Age range
- 12+ years
- Sex
- All
- Healthy volunteers
- No
Detailed criteria
Inclusion Criteria: * Documented diagnosis of AHP, per physician's determination Exclusion Criteria: * Currently enrolled in a clinical trial for any investigational agent
Locations (30)
- Clinical Trial SiteBirmingham, Alabama
- Clinical Trial SiteGilbert, Arizona
- Clinical Trial SiteSan Francisco, California
- Clinical Trial SiteBaltimore, Maryland
- Clinical Trial SiteBoston, Massachusetts
- Clinical Trial SiteMinneapolis, Minnesota