Multi-Stakeholder Engagement for Interdisciplinary Telehealth in Lewy Body Dementia
University of Florida
Summary
Lewy body dementia (LBD) is the 2nd most common neurodegenerative dementia in the US. Optimal care requires an interdisciplinary approach, however often faced barriers include rural residence, limited access to specialists, travel distance, limited awareness of resources, and physical, cognitive, and behavioral impairments making travel to appointments challenging. Delivering interdisciplinary care remotely using video technology has the potential to improve access to care for patients with LBD.
Description
The purpose of this study is to convert an in-person patient-centric interdisciplinary care model to a virtual platform using stakeholder engagement from individuals with LBD, their caregivers and healthcare providers. Subsequently researchers will conduct a prospective, randomized, controlled pilot study implementing the virtual stakeholder developed interdisciplinary care model (tele-neurohub) for 6 month and assess the implementation outcomes of feasibility, acceptability, and appropriateness of the tele-neurohub model. The research goal is to establish and iteratively improve a virtual int…
Eligibility
- Age range
- 18–100 years
- Sex
- All
- Healthy volunteers
- Yes
Participant with Lewy Body Dementia (LBD) Inclusion Criteria: * LBD diagnosis by a dementia or movement disorders specialist * Clinician-determined mild-moderate dementia severity * Internet access with a Zoom-compatible device * Caregiver who resides in the patient's home and is willing to participate * Fluency in English
Interventions
- BehavioralTele-neurohub
Interdisciplinary care delivered using telemedicine (zoom) technology which includes neurologist, physical, occupational and speech therapy, social worker and dietician.
Location
- University of FloridaGainesville, Florida