Northwell Health
The purpose of this research study is to compare the Always Uniquely Me (AUM) mobile application to regular medical care. The investigators want to know if AUM is helpful at decreasing use of restraints and improving experience in the emergency department (ED) for people with intellectual and developmental disabilities (PWIDD). The investigators will also be looking at how certain characteristics of the PWIDD participants may affect those outcomes.
PWIDD have high rates of ED use and poor quality of experience in EDs compared to the general population. Among a multistate cohort of adults with IDD, the risk of emergency department visits for adults with IDD was more than twice that for other adults, particularly for conditions that can be safely treated in the community (e.g., urinary tract and respiratory infections), and psychiatric conditions.1 PWIDD were more likely than those without IDD to visit the ED in a population based cohort in Ontario, Canada. For both groups, receiving greater continuity of primary care was associated with l…
Inclusion criteria for primary participant/PWIDD (person with intellectual and/or developmental disability): * have visited a Northwell Health Emergency Department in the last 12 months * have a confirmed intellectual and/or developmental disability * must be 18 years of age or older at enrollment * have a smart phone or tablet that connects to the internet * have a preferred language of English
The app will allow the user to organize their healthcare information and personal needs which can help improve communication with doctors, clinicians and first responders.
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