A Pilot Study of Cancer Care Companion, An Electronic Health Record Tool to Improve Information Exchange and Self-Management in Pediatric Cancer
Washington University School of Medicine
Summary
This study invites parents of children with cancer to use an electronic health record (EHR)-based communication tool, called the Cancer Care Companion, and assess the acceptability, appropriateness, and feasibility of the tool.
Description
High-quality communication between clinicians and parents is critical to providing optimal care for pediatric cancer. This study engages parents of children with cancer to use an electronic health record (EHR)-based communication tool, called the Cancer Care Companion, and assess the acceptability, appropriateness, and feasibility of the tool. Parent participants will be given 3 months of access to Cancer Care Companion, after which the participant(s) will complete a semi-structured interview. Participants will also complete a survey of validated measures before and after the intervention.
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- No
Eligibility Criteria for Parents: Parents of children with cancer will be enrolled if they meet the following criteria: * They are a legal guardian of a child diagnosed with cancer in the prior 4 weeks. * The child plans to receive or currently receives cancer directed therapy at St. Louis Children's Hospital. * The parent or legal guardian has access to internet through a computer or smart phone. * Speaks and reads in English * The parent or legal guardian agrees to enroll in Epic MyChart to access a proxy portal for their child. Eligibility Criteria for Clinicians: * Clinicians with pati…
Interventions
- OtherCancer Care Companion
The investigators will provide parents access the Cancer Care Companion through Epic MyChart. If a participant has not enrolled in MyChart, the investigator will provide instructional materials and assist with registration. Parents will use the Cancer Care Companion for 3 months during which they will complete tasks including educational modules, check-in surveys, and patient stories. Participants may opt-out of receiving the patient stories. During the 3-month intervention, participants will receive 13 educational tasks, 7 check-in surveys, and 5 patient stories (if requested). The Day 1 educational task will include an overview of the program and further instructions. After enrollment, participants will retain access to Cancer Care Companion for at least 3 months, during which they can revisit the content.
Location
- Washington University School of Medicine/Saint Louis Children's HospitalSt Louis, Missouri