The Scleroderma Registry & Repository
Hospital for Special Surgery, New York
Summary
The overall objective of the Scleroderma Registry is to support and promote the basic science and clinical research of this complex rheumatic disease at the Hospital for Special Surgery (HSS). The registry facilitates our understanding of the clinical features, pathobiology, genetics of Scleroderma. This will ultimately lead to a potential treatment for this currently untreatable condition.
Description
What will be asked of you: * Completion of 2 health questionnaires * Donation of research bloods. This is optional, but encouraged (if possible). * We also encourage patients who come for initial visits to return so follow-up data can be collected. Benefits to Patients: * The HSS Scleroderma Registry gives patients the opportunity to participate in observational research with the goal of improving the lives of patients in the future. * By donating research bloods and providing clinical information, patients will help generate new knowledge about Scleroderma that can guide the treatment and…
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: * Individuals older than 18 years of age with Scleroderma Exclusion Criteria: * Individuals younger than 18 years of age * Individuals older than 18 years of age without Scleroderma
Location
- Hospital for Special SurgeryNew York, New York