Center for Biomedical Research, LLC
Proton therapy is a limited medical resource that is more expensive than conventional x-ray therapy. To correctly measure the success of proton therapy in treating different conditions, it is important to check a patient's health status after their treatment is finished. Checking on the progress of patients over many years (called long-term follow-up) is needed because the long-term effects of proton therapy are not well known.
The objective of this research protocol is the development of a national Proton Therapy Center Registry for the purpose of: 1. Performing retrospective research studies on diseases treated with proton therapy throughout the United States. 2. Maintaining regular, lifetime contact with subjects in order to obtain current identification , contact information, and self/parent-reported health status in order to obtain a better understanding of overall treatment strategies and patient benefits of treatment. 3. Permitting review of medical record information contained within the Registry to identify…
Inclusion Criteria: * All subjects who are receiving or seeking medical care at the participating Proton Therapy Center will be invited to participate in the Research Registry. Exclusion Criteria: * Subjects who do not agree to participate
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