Kidney Cancer DNA Registry
Memorial Sloan Kettering Cancer Center
Summary
This registry will help us develop better methods of: * Preventing these cancers * Diagnosing these cancers * Treating these cancers
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: Kidney Cancer Case Cohort: * Must be ≥ 18 years of age AND * Must be an English-speaker AND * Must have a diagnosis or suspicion of kidney cancer Family Member Cohort: * Must be ≥ 18 years of age AND * Must be an English-speaker AND * Must be a blood relative of the proband. Family members of probands including mother, father, sisters, brothers, half-sisters, half-brothers, daughters, sons, grandmothers, grandfathers, as well as aunts and uncles are eligible. These individuals need not have kidney cancer, as they will be used for segregation analysis of suspected varian…
Interventions
- Othersalvia for germline DNA
- Behavioralthe Kidney Cancer Questionnaire
Patients will complete the appropriate surveys on either paper or on the computer/iPad in the office using REDCap software. If patients are unable to complete their questionnaires at the time of their in-office visit, a link to the questionnaires in REDCap will be emailed to them. The survey data that is collected in REDCap will be stored in REDCap. Clinic staff may also call patients to remind patients to complete questionnaires.
- BehavioralFamily History Questionnaire (when applicable)
Patients will complete the appropriate surveys on either paper or on the computer/iPad in the office using REDCap software. If patients are unable to complete their questionnaires at the time of their in-office visit, a link to the questionnaires in REDCap will be emailed to them. The survey data that is collected in REDCap will be stored in REDCap. Clinic staff may also call patients to remind patients to complete questionnaires.
- OtherBlood draw
- BehavioralEpidemiologic Questionnaire
Patients will complete the appropriate surveys on either paper or on the computer/iPad in the office using REDCap software. If patients are unable to complete their questionnaires at the time of their in-office visit, a link to the questionnaires in REDCap will be emailed to them. The survey data that is collected in REDCap will be stored in REDCap. Clinic staff may also call patients to remind patients to complete questionnaires.
Locations (7)
- Memorial Sloan Kettering at Basking Ridge (Consent and Follow-up)Basking Ridge, New Jersey
- Memorial Sloan Kettering Monmouth (Consent and Follow up)Middletown, New Jersey
- Memorial Sloan Kettering Bergen (Consent and Follow up )Montvale, New Jersey
- Memorial Sloan Kettering Commack (Consent and Follow-up)Commack, New York
- Memorial Sloan Kettering Westchester (Consent and Follow up)Harrison, New York
- Memorial Sloan Kettering Cancer Center (All Protocol Activities)New York, New York