Mobile Health Self-Management and Support System for Chronic and Complex Health Conditions (Component 3)
University of Pittsburgh
Summary
This study will assess the benefits of using mobile health system designed for individuals with chronic and complex health conditions (such as those with Spinal Cord Injury,Cerebral Palsy, Spina Bifida, and Traumatic Brain Injury) to improve their wellness and self-management skills compared to those who receive standard of care only.
Description
Individuals with chronic and complex conditions such as those with spinal cord injury (SCI),Cerebral Palsy (CP), Spina Bifida (SB), and Traumatic Brain Injury (TBI), often require complex self-management routines to manage various needs such as bowel and bladder, skin integrity, and general health and wellness. Tasks such as self-catheterization, bowel regimens, skin checks, and routine administration of medications require consistent follow-through to prevent complications. Early detection and treatment of problems such as urinary tract infections (UTIs) or wounds, can prevent serious complic…
Eligibility
- Age range
- 12+ years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: 1. 12 years or older. 2. have a diagnosis of a chronic and complex condition such as Spina Bifida, Spinal Cord Injury, Cerebral Palsy and Traumatic Brain Injury, etc. 3. live in a community setting (not within a residential facility that provides care to them). 4. pass all the functional screening tests which include basic usage of a smart phone, and impairment severity assessments Exclusion Criteria: 1. Diagnosis of severe intellectual disability or severe and persistent psychiatric illness. 2. Failing all the screening tests due to severe impairments that cannot be acc…
Interventions
- DeviceMHealth
The Mhealth system consists of a suite of apps to support participants manage their self-care and the clinician portal. Participants will use the system for 1 year.
Location
- University of PittsburghPittsburgh, Pennsylvania