Duke University
The Allied Cleft \& Craniofacial Quality-Improvement and Research Network (ACCQUIREnet) is a group of multidisciplinary cleft teams that have implemented a system for prospective collection of outcomes data, based on the ICHOM Standard Set for the Comprehensive Appraisal of Cleft Care, CLEFT-Q, and other outcomes instruments. Participating cleft teams may analyze clinical and psychosocial outcomes related to care of the child with cleft lip and/or palate (CL/P), compare its performance with those of other cleft centers, and identify opportunities for quality improvement.
The purpose of this project is to implement a system of prospective, standardized data collection for all patients with cleft lip and/or palate (CL/P) treated by the cleft and craniofacial centers that participate in ACCQUIREnet. Adoption of this prospective data-collection system has two principal goals: 1. To enable on-demand and scheduled review of cleft-care-related safety and outcomes data and team performance for the purpose of internal audits and continuous quality improvement; and 2. To permit participation in multi-site, collaborative quality-improvement projects and/or research net…
Inclusion Criteria: * Typical orofacial clefts, of which subtypes are: * Unilateral or bilateral cleft lip * Unilateral or bilateral cleft lip and alveolus * Unilateral or bilateral cleft lip and alveolus and palate * Unilateral or bilateral cleft lip and palate * Overt cleft palate * Occult cleft palate Exclusion Criteria: * Atypical (Tessier) facial clefts