COPD Patient-Powered Research Network
COPD Foundation
Summary
The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: * 18 years or older that says yes to one of the following: * COPD diagnosis * Current or former smoker * Family history of respiratory disease * Symptomatic of respiratory disease Exclusion Criteria: * Non-English speaking
Interventions
- OtherPatient Reported Outcomes
Location
- COPD FoundationWashington D.C., District of Columbia