Memorial Sloan Kettering Cancer Center
The purpose of this study is to find out about the quality of life and health in patients who had retinoblastoma in one eye (unilateral retinoblastoma), who either received treatment with chemotherapy injected directly into an artery leading to the eye (intra-arterial chemotherapy) or removal of the eye (enucleation). By quality of life, the investigators mean how the participants are feeling about being satisfied with things in their life, including, physical health, emotional health, and their ability to carry out daily activities. The investigators want to see if either treatment option would affect quality of life differently. The investigators hope that this information will help us provide better care to future children with retinoblastoma and better follow-up care for survivors of retinoblastoma.
Inclusion Criteria: * Ability to speak and understand English or Spanish * Diagnosis of unilateral retinoblastoma at any age, confirmed by the enrolling institution * Treatment of retinoblastoma between 2006 or later * Patients must between the age of 8-17 years old * At least 1 year since completion of all cancer-directed therapy * Treatment with enucleation of the affected eye or intra-arterial chemotherapy Parent of patient: * Ability to speak and understand English or Spanish * Ability to confirm that he or she is the parent of a child treated for unilateral retinoblastoma who meets the…
A comprehensive questionnaire, incorporating the BASC-3 and PROMIS measures, will be administered to parents of participants ages 8-17. The BASC-3 and PROMIS scales each have a parent and child version; these scales will be used to measure the secondary objective of parent and patient concordance rates for all participants ages 8 and older.
A comprehensive questionnaire, incorporating the BASC-3 and PROMIS measures, will be administered to parents of participants ages 8-17. The BASC-3 and PROMIS scales each have a parent and child version; these scales will be used to measure the secondary objective of parent and patient concordance rates for all participants ages 8 and older.
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