Dissemination of the Donor Application: Utilizing Social Media to Identify Potential Live Organ Donors
Johns Hopkins University
Summary
This study utilizes a web-based application to help patients on the organ transplant waitlist communicate patient's need for a living donor via social media and provide interested potential donors the opportunity to engage with the evaluation process.
Description
Barriers to identifying a live donor include lack of education and hesitance to initiate a conversation about live donation. For these reasons, many transplant candidates are hesitant to discuss candidate's illness and are therefore reluctant to pursue live donor transplantation. The investigators hypothesize that utilization of social media to spread awareness about candidate's illness and candidate's need for a live donor will enable many transplant candidates to successfully identify live donors. In this study, participants will use a novel web-based application, called the "Donor App", to…
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: * At least 18 years of age * On the kidney-only or liver-only transplant waiting list at a collaborating center Exclusion Criteria: * Younger than 18 years of age * Not on the kidney or liver transplant waiting list * On multiple organ transplant waiting lists
Interventions
- OtherThe Donor App
The Donor app is a web-based application that helps transplant candidates tell the candidate's story via social media in the hopes of identifying an appropriate living donor. Sample stories created using the Donor App can be found at www.thedonorapp.com.
Locations (6)
- Scripps Green HospitalSan Diego, California
- Yale UniversityNew Haven, Connecticut
- Rush University Medical CenterChicago, Illinois
- Maine Medical CenterPortland, Maine
- The Johns Hopkins HospitalBaltimore, Maryland
- Washington University in St. LouisSt Louis, Missouri