Assessment of Quality of Life in Cutaneous Lymphoma Patients Using the Skindex29
City of Hope Medical Center
Summary
This study assesses the quality of life in patients with cutaneous lymphoma diagnosis as it relates to their personal, clinical, and therapeutic information using the Skindex29 questionnaire and also assesses patients' understanding of their diagnosis and need for resources related to their care. Cutaneous lymphomas are a rare type of blood cancers (non-Hodgkin lymphoma) that present in the skin. The information gained from this study, may help researchers improve quality of life in cutaneous lymphoma patients.
Description
PRIMARY OBJECTIVES: I. To prospectively assess quality of life (QoL) in adult patients with cutaneous lymphoma (CL) via use of a validated questionnaire (Skindex-29) and identify the psychosocial needs of our patient population. II. To prospectively evaluate the burden of pruritus in patients with CL via use of 10-point pruritus scale and compare to QoL. III. To evaluate QoL for any correlation with demographic and clinical information, specifically, age, gender, race/ethnicity, type of CL, stage of mycosis fungoides (MF)/Sezary syndrome (SS), treatment regimen, and social work involvement.…
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * Agreement to participate in the research study * Presumed or confirmed diagnosis of CL
Interventions
- OtherQuality-of-Life Assessment
Complete quality of life questionnaire
- OtherQuestionnaire Administration
Complete quality of life questionnaire
Location
- City of Hope Medical CenterDuarte, California