University of Virginia
Data and specimens will be collected longitudinally from patients seen in the UVA Interstitial Lung Disease (ILD) clinic in order to describe the phenotypic expression of various interstitial lung diseases. Samples will also be collected from a control group for comparison purposes. All data will be entered into a repository for future research purposes or screening for new studies that become available. This data will help identify trends and hopefully lead to a better understanding of the disease progression, treatment options, and outcomes.
Following the clinical course of patients with ILD will allow description of the natural history of these diseases and prospective analysis of the following specific questions: 1. Can surrogate physiological markers of disease progression be used in place of mortality? Mortality of a defined cohort of patients will be developed. The surrogate markers include but are not limited to serial cardiopulmonary exercise testing, pulmonary function testing, 6-minute walk testing, HRCT scanning and echocardiography. 2. Do alternative assessments such as quality of life (QOL) questionnaires provide earl…
Inclusion Criteria: * Patient presenting to University of Virginia ILD or Pulmonary clinic * Family members accompanying patients (as control subjects) Exclusion Criteria: * Control subjects cannot have ILD
Not applicable - this is not an interventional trial
Arctuva estimate
Actual pay is set by the research site.
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