Children, Adolescents and Their Providers: the Narcolepsy Assessment Partnership (CATNAPTM)
Jazz Pharmaceuticals
Summary
CATNAP is a patient registry designed to improve the understanding of the natural history of narcolepsy in pediatric patients. Descriptive statistics on disease characteristics will be performed. The study has 16 active clinical sites and a virtual site that widens participation to anywhere in the United States. For more information about the study or to access the Online Patient Enrollment System, visit the CATNAP website: https://catnap.healthie.net/welcome or email catnap@pulseinfoframe.com. The Online Patient Enrollment System, CATNAP website, can also be found in the references section.
Eligibility
- Age range
- Up to 17 years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * Any child or adolescent with a physician-confirmed diagnosis of narcolepsy * Age less than 18 years * Willing to participate in the Registry and complete the informed consent form * Able to participate in English based registry Exclusion Criteria: * Age 18 years or more * Fail to complete the informed consent form
Locations (25)
- Phoenix Children's HospitalPhoenix, Arizona
- University of ArizonaTucson, Arizona
- University of ArkansasFayetteville, Arkansas
- Arkansas Children's Research InstituteLittle Rock, Arkansas
- Stanford UniversityRedwood City, California
- University of California San DiegoSan Diego, California