Eosinophilic Gastrointestinal Disorders Registry
Ann & Robert H Lurie Children's Hospital of Chicago
Summary
The purpose of this study is to learn more about Eosinophilic Gastrointestinal Disorders (EGIDs). With this registry we hope to find out more about the symptoms that patients have during their treatment, the quality of life they have with the diagnosis, what the disease looks like throughout the different treatment methods, and if there is a connection between EGIDs and connective tissue disorders. The goal of this study is to be able to better understand EGIDs and use information gained from all the information collected on this study for more precise treatments in the future. We want to create a large collection of samples, called a biorepository, to learn the most about EGIDs as possible. When the samples are collected, which will occur at procedures directed by your child's doctor as part of their standard of care, they will be stored for an unlimited amount of time to perform experiments on these samples and to gather information about EGIDs
Description
Eosinophilic gastrointestinal disorders (EGIDs) comprise a family of disorders that includes Eosinophilic Esophagitis (EoE), Eosinophilic Gastritis (EG), Eosinophilic Gastroenteritis (EGE), and Eosinophilic Colitis (EC). The natural history of EGIDs is not well characterized. The aim of this registry is to create a comprehensive prospective database of EGID patients as a foundation towards an improved understanding of disease progression and pathophysiologic mechanism. There is a critical need to understand the relationship between disease mechanism, treatment response, measurements of disease…
Eligibility
- Age range
- 1–25 years
- Sex
- All
- Healthy volunteers
- Not specified
Inclusion Criteria: * Patients with an established diagnosis of an EGID, based on pathology findings from an endoscopy or colonoscopy with biopsies. * Patients suspected of having an EGID and undergoing endoscopic evaluation for further assessment Exclusion Criteria: * Patients who do not consent to participate
Location
- Ann & Robert H Lurie Children's Hospital of ChicagoChicago, Illinois