Improving Participation in Pulmonary Rehabilitation Through Peer Support and Storytelling
Baystate Medical Center
Summary
Chronic Obstructive Pulmonary Disease (COPD) affects approximately 16 million Americans and is characterized by recurrent exacerbations that lead to 1.5 million Emergency Department visits and 700,000 hospitalizations annually. Pulmonary rehabilitation (PR) is a structured program of exercise and self-management support that has been proven to relieve shortness of breath and increase quality of life when initiated after an exacerbation, but unfortunately, few eligible patients participate. This project will compare the effectiveness of two novel strategies - one involving video narratives of other patients telling their story of how they overcame challenges and completed PR, the other involving telephonic peer coaching with an individual with lived experience - to enhanced usual care, and to each other, at increasing patient participation in PR after an exacerbation.
Description
Exacerbations of Chronic Obstructive Pulmonary Disease (COPD) lead to roughly 1.5 million ED visits and 700,000 hospitalizations annually. Recovery is slow and accompanied by high levels of acute care utilization and mortality. Pulmonary Rehabilitation (PR) is a structured program of exercise and self-management support that has been shown to relieve dyspnea and improve quality of life. Clinical guidelines recommend PR for patients with stable COPD and after an exacerbation. Unfortunately, even when referred by physicians, research has shown that few patients who might benefit from PR ever beg…
Eligibility
- Age range
- 40+ years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * 40 years or older * Received treatment for COPD exacerbation in either inpatient or outpatient setting * Referred for pulmonary rehabilitation * Ability to understand and communicate in English * Willingness to participate in calls with peer coach and to view storytelling videos * Working phone Exclusion Criteria: * Unwilling to attend PR * Not eligible for PR based on spirometry or other clinical contraindications as determined by PR staff * Currently enrolled in, or completion of 12 or more sessions of PR in the past * Comfort measures only or Hospice care * Resident…
Interventions
- BehavioralTelephonic Peer Coaching
Telephonic Peer Coaching from an individual with lived experience with COPD and Pulmonary Rehabilitation trained in motivational interviewing
- BehavioralStorytelling
Video narratives of an individual with lived experience with COPD and Pulmonary Rehabilitation describing their journey through Pulmonary Rehabilitation
Location
- Baystate HealthSpringfield, Massachusetts