Improving Communication With and Building a Stronger Medical Home Among Spanish-speaking Families in the Center for Cancer and Blood Disorders
University of Colorado, Denver
Summary
This study will seek to improve communication with Spanish speaking families and patients with Cancer and Blood Disorders.
Description
The Principal Investigator seeks to improve communication with Spanish speaking families with the following goals: 1) to increase patient and family sense of inclusion in the medical community, 2) to increase patient and family medical knowledge and understanding, 3) to improve patient adherence with critical medical regimens, and ultimately, 4) to increase equality of comprehensive medical care delivery across the continuum of care including physical and psychosocial domains.
Eligibility
- Age range
- Up to 22 years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * 0 to 22 years of age * Diagnosis of leukemia or non-Hodgkin lymphoma * Spanish as preferred language for patient, parent or guardian * Received or receiving care at the Center for Cancer and Blood Disorders (CCBD) Exclusion Criteria: * Patients without oncologic diagnosis * Patients with parents whose language preference is English * Patients who received care solely outside of the CCBD
Interventions
- OtherInterview
Patient/parent dyads expressing interest will be interviewed by a bilingual Spanish certified provider via televideo with as needed interpreter support. Interviews will be audio recorded for review and translation purposes and then will be destroyed. Interview format will be supportive and information seeking only with reassurance that purpose is for care improvement and that all answers will be evaluated without association to patient name. Interviews will then be translated and reviewed by the PI for themes regarding perceived clinic successes and perceived clinic barriers in communication or care.
Location
- Children's Hospital ColoradoAurora, Colorado