Barriers and Motivators Associated With Access to Care and Participation in Research Studies for Parkinson's Disease Among Asian Americans
Tufts University
Summary
The ultimate goal of this project is to use the findings to develop culturally appropriate programs and resources that can be disseminated to key stakeholders to improve access to PD care and increase inclusivity in PD research for Asian Americans. This study will serve as a first step towards developing broader community and patient education programs and active outreach campaigns to increase PD-specific literacy among Asian Americans. The results from this study will elucidate the role that language barriers, cultural perceptions, family influence, and other predisposing, enabling, or need factors have on delaying care for PD among Asian Americans. It will also provide much needed insight on how to improve inclusion of Asian Americans in PD research studies.
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: * Objective 1 (chart review): 1. Chinese or Vietnamese ethnicity 2. Age: 18 years of age or older 3. Diagnosed or presented for PD care at the Tufts Medical Center (TMC) Movement Disorders Clinic (MDC) from January 1, 2010 to December 31, 2019. * Objective 2 (qualitative study): 1. Asian American person diagnosed with PD: 1. Diagnosed with PD 2. Chinese or Vietnamese ethnicity 3. Age: 18 years of age or older 4. Able to participate in an interview by phone or on Zoom 5. Able to provide informed consent 2. Primary caregivers of Asian Am…
Interventions
- OtherInterviews and Surveys
Qualitative interviews and surveys
Location
- Tufts University School of MedicineBoston, Massachusetts