Gender Related Coping and Survivorship for Genitourinary Cancers
Johns Hopkins University
Summary
This research is being done to learn more about coping and survivorship of women with bladder cancer, specifically regarding psychosocial distress and sexual dysfunction. This study is a non-therapeutic study and will randomize participants to a standard of care group and education group. Patients in both groups will be asked to complete surveys regarding their mood and sexual function. Patients in the intervention group will be asked to complete attendance diaries regarding educational and support services utilized. Participants' clinical data will also be collected.
Description
The Gender Related Coping and Survivorship Study for Genitourinary Cancers is focused on providing patients with additional education to promote sexual function in female bladder cancer patients with the aim to help decrease demoralization and sexual dysfunction. Patients receiving a cystectomy and patients not receiving a cystectomy will be randomized separately into an additional education or standard of care group. The additional education consists of asking patients to attend the Women and Bladder Cancer Educational Series, Women's Bladder Cancer Support Group meetings, referrals to other…
Eligibility
- Age range
- 18+ years
- Sex
- Female
- Healthy volunteers
- No
Inclusion Criteria: * Females with bladder cancer * Willing to answer surveys regarding their psychosocial health and sexual health Exclusion Criteria: * Not undergoing either active treatment or active surveillance (i.e. patients on hospice care) * Patients with cognitive impairments * Women who are pregnant
Interventions
- OtherAdditional Education
Study-Specific Patient Handouts, Treating-Provider led counseling, Women's Bladder Cancer Support Group, Women's Bladder Cancer Educational Series, and referrals for additional support services
- OtherQuestionnaires
Female Sexual Function Index, Demoralization Scale-II
- OtherAttendance Diary
Attendance Diaries for the Women's Bladder Cancer Support Group, Women's Bladder Cancer Educational Series, and additional educational and support services utilized
Locations (2)
- Sibley Memorial HospitalWashington D.C., District of Columbia
- Johns Hopkins HospitalBaltimore, Maryland