PODER Familiar: A Health Promotion Intervention for Latino Families of Children With Intellectual and Developmental Disabilities
University of Texas at Austin
Summary
The goal of this clinical trial is to test a culturally tailored health promotion intervention for children with IDD and their families. First investigators will conduct a single group design pilot study of a health promotion intervention, followed by second, a small-scale randomized control trial (RCT). of the intervention with Latino parents of children with intellectual and developmental disabilities (IDD) in the Chicago, Illinois and Austin, Texas areas. The following research questions will be addressed: Question 1: What is the appropriate content, dosage, and delivery method of the intervention? Question 2: What is the feasibility and acceptability of the intervention? Question 3: Do participants improve between pre and post-test on outcome measures both in the one group design and compared to the control group in the RCT? Parents will receive 10 weekly remote sessions on health promotion content delivered by parent mentors called promotoras. Parents and children will attend 3 multi-family group workshops in-person that will provide demonstrations and interactive activities.
Description
PODER Familiar will consist of 10 weekly remote one-on-one sessions with the parent and the promotora, and 3 monthly multi-group family sessions to be held in-person. The weekly remote sessions will be conducted on a video-chat platform The multi-group family sessions will be held at a community friendly location (a community center or space at a community organization) in which 3 to 5 families will attend. Family units will consist of the parent and child with IDD and other family members who wish to attend (other parent, siblings, etc.). Group sessions will reinforce content covered in the c…
Eligibility
- Age range
- 6–100 years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: Parent/Caregiver * identify as parent or primary family caregiver * 18 years of age or older * Identify as Latino/a or of Latin American Descent * have a child with IDD between 6 and 17 years of age Child with IDD * between 6 and 17 years old * the child has a diagnosis of autism spectrum disorder, Down syndrome or intellectual disability Exclusion Criteria: * Child uses mobility aid
Interventions
- BehavioralPODER Familiar
Educational intervention designed to improve healthy behaviors of families of children with intellectual and developmental disabilities.
Locations (2)
- University of Illinois at ChicagoChicago, Illinois
- Steve Hicks School of Social Work, University of Texas at AustinAustin, Texas