Improving Advance Care Planning Around Mobility Needs Among Patients With Sarcoma
Fred Hutchinson Cancer Center
Summary
This trial tests how well the advanced care planning around mobility needs checklist tool works to assess future mobility needs in patients with sarcoma. Gathering information about sarcoma patients that have had surgery to either save or remove a limb may help doctors learn more about a patient's mobility needs. Using an advance care planning mobility needs assessment may help improve the quality of life in patients with sarcoma by helping them plan for their future mobility needs.
Description
OUTLINE: FIELD TEST: Participants complete the advance care planning (ACP) Mobility Checklist on study. Participants complete questionnaires at baseline and after completing the checklist intervention and undergo interview on study. Participants' medical records are also reviewed.
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: * PATIENTS: Age 18 years of age or older. * PATIENTS: English speaking * PATIENTS: Able to provide informed consent * PATIENTS: Have access to a computer or other device to fill out the online checklist * PATIENTS: Have had either limb salvage or amputation surgery for sarcoma within the last 6 months OR have metastatic (stage IV) sarcoma and are in active treatment. * CAREGIVERS: Age 18 years of age or older * CAREGIVERS: English speaking * CAREGIVERS: Able to provide informed consent * CAREGIVERS: Have access to a computer or other device to fill out the online checklist…
Interventions
- BehavioralAssessment
Complete checklist
- OtherQuestionnaire Administration
Complete questionnaires
- OtherInterview
Undergo semi-structured feedback interview
- OtherElectronic Health Record Review
Review of medical records
Location
- Fred Hutch/University of Washington Cancer ConsortiumSeattle, Washington