ChronCan (Chronicling Cancer): Piloting a Novel Writing Intervention With Adolescents and Young Adults With Cancer
St. Jude Children's Research Hospital
Summary
Young people with cancer have difficult experiences and writing exercises may help improve their well-being. However, very few studies have examined how a creative writing activity might be useful for young people with cancer. In this pilot study, researchers at St. Jude Children's Research Hospital hope to explore whether teenagers and young adults with cancer want to participate in a writing exercise and whether they find it to be valuable. Primary Objective To assess the feasibility and acceptability of a writing-based narrative medicine intervention for adolescent and young adult patients with cancer.
Description
Participants will be given the opportunity to write about their experiences with cancer, with support and guidance from an expert writer. Participants will meet briefly with the expert at the start of the exercise (15-30 minutes), and they can choose to meet 1-3 additional times with the expert over the next 2 months to receive further support if they wish. After completing the writing exercise, participants will do an informal interview to share their thoughts about whether the experience of writing felt helpful or not. The post-intervention interview will occur at around 2 months after enro…
Eligibility
- Age range
- 15–25 years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * Aged 15-25 * Currently receiving cancer-directed therapy * Active patient at St. Jude Children's Research Hospital * Parent of a ChronCan participant who has passed away Exclusion Criteria: * Does not meet the inclusion criteria * If the parents have not responded or not interviewed till July 31, 2027.
Interventions
- BehavioralWriting
Participants will be asked to write about their experiences with cancer, guided by several specific open-ended writing prompts to spark ideas.
- BehavioralInterview
Following completion of the writing exercise, participants will reflect on their experiences with the writing intervention in a semi-structured private interview with a member of the research team.
Location
- St. Jude Children's Research HospitalMemphis, Tennessee