Development of a Culturally Tailored Digital Resilience-Building Intervention for East Asian Immigrants With Cancer to Facilitate Advance Care Planning Discussions
University of Illinois at Chicago
Summary
The purpose of the study is to develop a culturally tailored digital resilience-building intervention to help East Asian immigrants engage in advance care planning discussions with their family caregivers.
Description
Advance care planning (ACP) is a process to facilitate decision-making for future care and document values and preferences. However, the advance directive completion rates in East Asian Americans are low, which may extend to disparities in end-of-life care, including rates of hospice use and prevalence of unwanted aggressive treatments. To address this, this study uses information technology to develop a culturally tailored digital resilience-building intervention with and for East Asian immigrants to help them engage in ACP discussions. There are two aims of this study: (1) Conduct semi-struc…
Eligibility
- Age range
- 18–80 years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria for Religious Leaders: * Age ≥ 18 years * Serving as a chaplain or religious leader at a healthcare setting or religious organization * Having experience providing pastoral or spiritual care to Chinese, Japanese, and Korean Americans in the US * Being able to read and respond to questions in English, Mandarin, Cantonese, Japanese, or Korean. Exclusion criteria: Not willing to provide consent. Inclusion Criteria for Patients: * Age ≥ 18 years * Having a cancer diagnosis * Likely self-identifying as a Chinese, Japanese, or Korean American/immigrant * Being able to read and…
Interventions
- BehavioralCulturally Tailored Digital Resilience-Building
The Culturally Tailored Digital Resilience-Building materials include an introduction to advance care planning and resilience skills that specifically address cultural beliefs and barriers.
- BehavioralSemi-structured interviews
Semi-structured interviews with religious leaders who provide spiritual care to Asian Americans/immigrants.
Location
- University of Illinois ChicagoChicago, Illinois