The Family Perspectives Project Pilot Trial
Matthew Modes
Summary
The purpose of the study is to conduct a pilot randomized trial of a program designed to enhance equitable communication and emotional support for families of critically ill patients in order to determine feasibility, acceptability, and participant experience with the program. The primary study procedures include: chart abstraction, questionnaires, meetings with ICU support counselors, meetings with ICU physicians and care team, audio recordings of these meetings (optional), and interviews with study participants (optional). Study participants include: 70 critically ill patients with acute respiratory failure (enrolled with the consent of their Legally Authorized Representative) and their primary surrogate decision makers as well as ICU support counselors and ICU care teams (physicians, nurses, social workers).
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: * Patient inclusion criteria: * Individuals 18 years old or older. * Individuals admitted to the medical intensive care unit (MICU) at Cedars-Sinai Medical Center. * Individuals with acute respiratory failure, defined as \>24 hours of invasive mechanical ventilation. * Individuals who received invasive mechanical ventilation within 24 hours of admission to the MICU. * Individuals expected to need invasive mechanical ventilation for \>72 hours total, as determined by the patient's intensivist physician (fellow or attending). * Primary surrogate decision maker inc…
Interventions
- BehavioralFamily Perspective Program
The program involves regular meetings between families and an ICU support counselor. The ICU support counselor is a trained expert in providing culturally competent emotional and/or spiritual support. The ICU support counselor will support families and also learn and summarize family perspectives in a standardized report. ICU care team members will be prompted to perspective take as they review reports prior to regular routine meetings between families and the ICU care team.
Location
- Cedars-Sinai Medical CenterLos Angeles, California