Shirley Ryan AbilityLab
The goal of this clinical trial is to learn about exercise and physical activity people with Parkinson's Disease. The main questions it aims to answer are: 1) learn about the physical activity and exercise behaviors of people with Parkinson's Disease over the course of a year and 2) compare 3 exercise guidance strategies aimed to impact exercise behavior: standard care, written exercise guidance from neurologist and/or physical therapy. During the course of the study: 1. Participants will use activity trackers and a mobile phone application to monitor their exercise participation. 2. At the same time, the research team will be working with the participant's medical teams at Northwestern Medicine and University of Chicago Medical Center to improve the way that they deliver exercise guidance using verbal instructions and encouragement, written exercise guidance, and/or physical therapy.
The purpose of this study is to gain a better understanding of how people with Parkinson's disease (PD) manage their physical activity and exercise participation with different levels of support from their communities and clinicians. We will evaluate exercise and physical activity every 3 months in a cohort of people with PD from two medical centers in the Chicagoland area: Northwestern Medicine and University of Chicago Medical Center. During this study, we will evaluate differences in 12-month physical activity trajectories between groups enrolled during each of three conditions: (1A) stand…
Inclusion Criteria: * Have a neurologist confirmed diagnosis of Parkinson's Disease * Hoehn\&Yahr Stage 1-3 * Age 18-89 years old * Ambulatory * Written and verbal basic English proficiency adequate for survey completion * Have a smart phone * Willing to sync activity tracker with Datos health app at least every 3 days * Willing to accept Datos' Terms and Conditions Exclusion Criteria: * Diagnosis of dementia or mild cognitive impairment in medical record * Uses a rollator or rolling walker for mobility * Other comorbidities significantly limiting ability to participate in exercise \>12 wee…
Neurologists will provide written exercise education and guidance to their patients with Parkinson's Disease during neurologist visits and/or in after visit summary in the patient's EMR patient portal. The research team will facilitate the development of the written exercise guidance with input and feedback from each site's neurology, clinical, and administrative teams.
A consultative model of physical therapy - a lower dose of physical therapy focused on physical activity and exercise promotion and coaching - will be implemented into each site. In the consultative model of physical therapy, visits are scheduled around needs of the patient, however will involve 1-4 additional visits within 3 months of evaluation and is based on personal factors that influence their exercise prognosis such as self-efficacy, readiness to change, fitness level, age, health literacy, comorbidities, and Parkinson's Disease-related motor and non-motor impairments.