Children's Mercy Hospital Kansas City
This repository will consist of home monitoring data, videos, and images of patients with feeding difficulties for asynchronous remote patient monitoring of manually entered data sent by parents to the healthcare team using the CHAMP App for children with feeding difficulties. This information will be collected under a research protocol and this repository is for future research applications.
Around 25% of children are reported to have some degree of feeding issues of whom 3-10% have more severe feeding disorders1. Many of these feeding issues and difficulties can also lead to a need for supplemental nutrition in a child's diet due to the impact on growth. Those requiring supplemental nutrition may find themselves having to be fed using tube feedings (TF), which carries its own set of obstacles and factors to consider. While feeding problems have been estimated to occur in 25%-35% of children observed as exhibiting normal growth, that number may spike to 85% in those with GI-relate…
Inclusion Criteria: * Patients enrolling in this research repository must also be enrolled in an applicable study (STUDY00002775, STUDY00003221) wherein they have consented to use CHAMP App * Parent-Legally authorized representative can read one of the eleven languages that the CHAMP App is available in. Exclusion Criteria: • All patients and parents/Legally authorized representative not meeting the above specified criteria
CHAMP App software platform will have been used in other research studies to be included in the Feeding difficulties repository
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Actual pay is set by the research site.
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