Caregiver as Navigator: Develop Skills Online (CAN-DO) Developing Dementia Family Caregiver Mastery for Navigating Complex Health, Social Service, Legal, Financial, and Family Systems
Emory University
Summary
This study is designed to learn more about ways to promote caregiver mastery online. 270 dementia family caregivers will be enrolled and randomized to take the CAN-DO online course immediately or after a waiting period. They will participate in interviews before and after the course; total time of study participation is 6 months.
Description
Family members and friends are the core of the uncoordinated system of care that tenuously maintains persons living with dementia in their community settings and delays their placement into more costly settings of institutional care, providing more contributed and out of pocket care support than Medicare and Medicaid combined. The CAN-DO program fills a significant gap in caregiver psychoeducation programming by focusing not principally on day-to-day care management but on the many substantial system navigation tasks that caregivers assume. Supported by preliminary efficacy data, CAN-DO will…
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * Family member or friend providing at least 4 hours per week of informal care for a community-dwelling person living with ADRD * 18 years or older * Has internet access * Does not have to co-reside with the individual * Understands, speaks, and reads English Exclusion Criteria: * Family caregiver plans to move care recipient to an institutional setting within the next six months * Care recipient currently enrolled in hospice
Interventions
- OtherCaregiver as Navigator: Develop Skills Online (CAN-DO) program
Online, asynchronous psychoeducation program for dementia family caregivers. The program is meant to enhance caregivers' knowledge and skills for navigating healthcare, financial, legal, and family systems. The program has three main sections. * The first section provides information and how to prepare for using the healthcare system and community-based services in dementia care and support. * The second provides information about how to be more effective when using the financial and legal system either for yourself or your person. * The third section of the course provides information about ways to manage and navigate family dynamics present in various caregiving scenarios more effectively.
- OtherHealthy Living online course
Online program for dementia family caregivers about "Healthy Living" for the first 4 months post-randomization.
Location
- Emory Roybal Center for Dementia Caregiving MasteryAtlanta, Georgia