A Phase I Clinical Trial Evaluating the Impact of the Family Room App on Caregiver Well-being, Satisfaction, and Engagement in the Intensive Care Unit
University of Nebraska
Summary
Engaging families in patient care during serious illness can enhance care quality, reduce social isolation, boost satisfaction, and lower healthcare costs. However, active involvement of family caregivers remains limited because there are no evidence-based tools to guide clinicians on how to include them effectively. This study will test and refine previously developed point-of-care application, Family Room, and determine its effectiveness by comparison with a control group. A series of surveys will be used to evaluate caregiver well-being, engagement and satisfaction.
Description
Engaging families in patient care during serious illness can enhance care quality, reduce social isolation, boost satisfaction, and lower healthcare costs. However, active involvement of family caregivers remains limited because there are no evidence-based tools to guide clinicians on how to include them effectively. This study will test and refine previously developed point-of-care application, Family Room, and determine its effectiveness by comparison with a control group. A series of surveys will be used to evaluate caregiver well-being, engagement and satisfaction. The investigators will…
Eligibility
- Age range
- 19+ years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: * 19 years of age or older * Present at participant's bedside during the intensive care unit (ICU) admission * Participant's legally authorized representative (LAR) or designated caregiver to make medical decisions on their behalf Exclusion Criteria: • Not legally authorized representative (LAR) or designated caregiver to make medical decisions on their behalf
Interventions
- DeviceFamily Room Application
The Family Room application is a point of care tool that guides families on contributing to patient participant care by providing real time education, a sense of connection, emotional support, and resources that enable meaningful care giving. Importantly, family caregiver participants receive virtual training on comfort-focused care activities that can be done at the bedside, as well as a mechanism within the electronic health record (EHR) to measure and record the effectiveness of the care they provide.
Locations (2)
- Nebraska MedicineOmaha, Nebraska
- University of Nebraska Medical CenterOmaha, Nebraska