The COMPASSION Study: Applying Telehealth to Innovate and Strengthen Connections for Patients With Metastatic Breast Cancer Receiving Hospice Care
Dana-Farber Cancer Institute
Summary
The aim of this research study is to better understand the in-home hospice experience for participants, caregivers, hospice nurses, and oncology providers by conducting telehealth check-ins between participants and caregivers and oncology care teams.
Description
The aim of this research study is to better understand the in-home hospice experience for participants, caregivers, hospice nurses, and oncology providers by conducting telehealth check-ins between participants and caregivers and oncology care teams. Study procedures include giving verbal consent to participate and a one-time survey delivered by email or phone call. About 200 people, which includes 50 participants, 50 caregivers, 50 hospice nurses, and about 50 oncology providers, are expected to participate in this research study.
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * Patient of any gender with unresectable locally advanced or metastatic breast cancer * Eligible for in-home hospice services and referred by DFCI clinical team to in-home hospice \</= 1 week before enrollment * Ability to conduct video or phone check-ins, even if assistance required. * Able to provide verbal consent with a willingness to take a survey at 4-6 weeks, if medically able * Hospice setting is within Massachusetts * Non-English language allowed but interpreter services must be present at each meeting and will be coordinated by scheduling team * Willingness to p…
Interventions
- OtherTelehealth Hospice Visits
Telehealth check-in appointments with oncology care team, MD, PA, NP, or hospice nurse, via HIPAA compliant telehealth platform, Zoom, or by phone call.
Location
- Dana-Farber Cancer InstituteBoston, Massachusetts