Educational Support Group Program for Carepartners of Bilingual and Spanish-speaking Persons With Progressive Forms of Aphasia and for Persons With Progressive Forms of Aphasia
University of Texas at Austin
Summary
The current study aims to examine the benefits of an education/support group program for individuals with progressive aphasia (caused by various etiologies, diagnoses) and their carepartners. The current study utilizes pre-, post-treatment, and follow-up assessments to measure effects of a psychoeducational support group and an implementation/communication skills training phase on measures of psychosocial function, communicative effectiveness and speech/language function. Analysis of study-specific surveys and semi-structured interviews will provide qualitative data regarding outcomes. Before beginning the education and support group, focus groups will be run in order to set priorities for the themes to be included in the education program. Participants will join via tele-based means if preferred and these participants may reside in the United States, or internationally including Mexico and Spain.
Description
Two educational/support group routes will be offered: 1. Progressive aphasia (PA) educational/support group or 2. Caregiver educational support group with an implementation phase (including their partner with PA). The caregiver educational support group path will be delivered in two phases, whereas the PA educational support group path will only consist of the first phase. The first phase of the caregiver educational support group will focus on the educational support group and the second phase will consist of implementation and practice of strategies with feedback provided by the clinician.…
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: All participants must: * speak Spanish and/or English (although participants may speak other languages in addition to Spanish and/or English) * identify as Hispanic and/or Latinx, * or their spouse/family member with PA identifies as Hispanic and/or Latinx * see and hear well enough to participate * have access to a computer or mobile device with video capability * have an internet connection Additional inclusion criteria for PA/ language-led dementia support group participants: * Individuals with PA: * Has a diagnosis of PA, or language-led dementia, and aphasia is one…
Interventions
- BehavioralPsychosocial educational, support group and implementation of strategies
Psychosocial educational, support group and implementation of strategies
Location
- University of Texas at AustinAustin, Texas