Myasthenia Gravis Foundation of America Global MG Patient Registry
Myasthenia Gravis Foundation of America
Summary
The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are: * How and when are people with MG diagnosed? * What are the most common symptoms associated with MG? * What treatments are being used to treat MG? * What are the impacts of MG on activities of daily living, employment and quality of life? * What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.
Description
This is a longitudinal, observational, patient reported registry.
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * age over 18 * positive MG diagnosis Exclusion Criteria: * age under 18 * misdiagnosed with MG
Location
- Myasthenia Gravis Foundation of AmericaWestborough, Massachusetts