A Multisite RWCT Comparing the Effectiveness of a Goals of Care Video and Navigator Intervention, the VIDEO-PEDS Experience, Versus Usual Care in Pediatric Cancer

Summary

The goal of this clinical trial is to learn if the VIDEO-PEDS intervention works to improve Goals of Care communication between clinicians and parents of children with cancer. The main questions it aims to answer are: Does the intervention improve Goals of Care documentation? Does it improve patient outcomes (including less invasive preferences for resuscitation and interventions, less hospital utilization, and more palliative care and hospice use)? Does it improve parent outcomes (including health satisfaction and feeling heard and understood per survey scores)?

Description

Eligibility

Age range

Not specified

Sex

All

Healthy volunteers

No

Interventions

• Other
  VIDEO-PEDS

  Following enrollment, parents will receive a link to view the refined video decision aid that is designed to prompt parents to think about their goals of care for their child with cancer, and then to react by engaging in communication with a trained member of the research team called the Navigator and eventually their clinical team over the course of the 9-month study duration.

• Other
  VIDEO-PEDS pilot

  This is the 3-month pilot version of the intervention, which will be further developed for the eventual RWCT.

• Other
  Focus Group

  Parents will view the Video aid and provide fascilitated feedback in an audio-recorded virtual group setting.

Locations (4)