Improving Parental Support in Hypospadias Care
University of North Carolina, Chapel Hill
Summary
The proposed study will enroll parent-child pairs and is designed to obtain new knowledge and improve hypospadias care. Parent-child pairs will be randomized into different groups over 36 months and participate for at least 6 months.
Description
The proposed study will approach and enroll parent-child dyads to receive one of two educational websites about hypospadias, a condition that their child has or may have. The parents will be approached and consented before their upcoming consultation with a pediatric urologist regarding hypospadias. The child may have one or more consultation visits with the pediatric urologist. Before the first consultation, the parents will be asked about their current hypospadias knowledge, questions about how they typically interact with doctors, comfort with information presented in a healthcare setting a…
Eligibility
- Age range
- Not specified
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria A parent must meet all of the following criteria to be included: * Age ≥ 18 years old * Fluent and literate in English or Spanish * Parent or legal guardian * Ability to consent * One eligible parent per child * Plan to attend urology consultation * Has access to a smart phone, tablet, or computer with reliable internet access * Has the ability and agrees to receive unencrypted communications by text or email A child must meet all of the following criteria to be included: * 0-5 years old at the time of urology consultation * Have an upcoming urology consult with an enrol…
Interventions
- OtherEducational Website Developed by Study Team
This website was developed by the study team in previous research studies.
- OtherBasic Educational Website
This website is a basic education website about hypospadias.
Locations (2)
- Indiana UniversityIndianapolis, Indiana
- University of North Carolina at Chapel HillChapel Hill, North Carolina