Columbia University
Aim 1: Refine the HRSN navigation model to integrate a digital platform (Findhelp.org) to meet the needs of AYAs. The investigators will conduct iterative co-design sessions with AYAs and caregivers to understand their views on the existing Findhelp.org website and the likely need for other human-to-human and digital strategies to augment platform engagement (e.g., text reminders) and to address vocational needs. Aim 2: Evaluate the feasibility and acceptability of the refined hybrid intervention that includes digital + person-to-person HRSN navigation. Aim 3: Explore the preliminary impact of the refined hybrid intervention, compared to elevated usual care (a one-time referral to FindHelp.org alone), on reduction in financial distress (AYA and caregiver) and on AYA global health (i.e., mental, social, physical).
Nearly 90,000 adolescent and young adults (AYA: defined by the National Cancer Institute \[NCI\] as age 15-39 years) are diagnosed with cancer annually in the United States (US), 85% of whom are expected to become long-term survivors. Compared to their peers, these survivors have an increased burden of chronic health conditions. AYAs also face devastating financial toxicity, defined as the negative personal financial impact of healthcare costs, resulting not only from the cost of care, but also from interrupted education, exclusion from the workforce, and developmental disruption in achieving…
Inclusion Criteria: Aim 1: * AYAs (age 18-39) who have/had a diagnosis of cancer are eligible to participate. * English or Spanish-speaking Aim 2 and 3: * AYAs (age 15-39) who were diagnosed with cancer or began treatment for cancer within the past 6 months, or those who are still on first treatment for cancer (non-relapse) * English or Spanish-speaking * For AYAs who are \< 18 years, caregiver participation will be required; for AYAs \> 18 years, caregivers may co-participate if desired; the primary unit of focus is the AYA patient. Exclusion Criteria: * Dyad with caregiver or younger A…
Support for AYA and vocational navigation sessions from clinical team
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