Early-Stage Partner in Care-Living Alone (EPIC-LA)
Arizona State University
Summary
EPICLA+ (Early-Stage Partners in Care Living Alone Plus) is a research project designed to assist people with early-stage memory loss who live alone in the community by providing early-stage related education and skill-training sessions, held via Zoom, designed to reduce stress, enhance well-being, manage challenges, and plan for the future. Researchers will gather feedback from individuals about their experience to continue to improve programs for early-stage memory loss.
Description
This study aims to create a supportive environment to help individuals with early-stage memory loss or early-stage dementia living alone in the community by providing education and skill-training programs, held via Zoom, where they can be educated in memory changes associated with dementia, learn to manage behavioral changes, improve communication skills, cope with stress, and plan for the future. About 70 people will be enrolled across the United States through Arizona State University. People who decide to participate in this program voluntarily will be asked to: Meet others in the earlier…
Eligibility
- Age range
- 60+ years
- Sex
- All
- Healthy volunteers
- No
Early-stage inclusion criteria 1. Must be at least 60 years of age 2. Must be able to participate in English or Spanish 3. Must be a US resident 4. Must be able to provide consent verbally and in writing (electronically or via mail) 5. Must exhibit at least 2 of 8 changes caused by thinking and memory problems on the AD8 (a reliable and valid 8-item dementia screening tool). 6. The Early-stage individual must have a diagnosis of early-stage ADRD or have a Mini-Mental State Exam (MMSE) score: 1. between 20-26 for those who have completed high school, or 2. between 17-26\*, for those who…
Interventions
- BehavioralPsychoeducational skills training intervention
This protocol is a minimal risk care values clarification /care planning and psychoeducational skills training intervention, delivered as a workshop series plus one in-home session for people in the early stages of memory loss who live alone. In addition, during this intervention, participants will have access to general and personalized virtual resources with materials for use during and after the intervention.
Location
- Arizona State UniversityPhoenix, Arizona