Adolescents and Young Adults With Cancer: Their Preferred Involvement in Decision Making
Stanford University
Summary
The purpose of this mixed-methods study is to determine Adolescent and Young Adult (AYAs) decision making preferences post cancer diagnosis using vignettes designed to assess their preferred involvement in decisions about their cancer treatment and variables associated with these treatment decision-making (TDM) preferences.
Eligibility
- Age range
- 15–29 years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: * Age (15-29 years) * Cancer diagnosis and on therapy, end-of-life or survivors (within 1 year) * Speaks English * Reads English * Cognitively and physically able to participate Exclusion Criteria: * Unable to participate in study due to developmental delay or developmental disorder
Interventions
- BehavioralClinical Decision-Making Scenarios and Preferences Assessment
Participants complete a socio-demographic questionnaire and decision-making preferences scale, including hypothetical clinical scenarios, to identify their preferred decision-making role (active, collaborative, or passive) and the influence of providers or family. Delivered electronically via secure link; reminders sent as needed.
Location
- Stanford UniversityPalo Alto, California