TIDES 2.0: Prevalence and Longitudinal Course of Depression, Anxiety, and Behavior Problems in Children With Cystic Fibrosis Under 12 Years of Age
State University of New York at Buffalo
Summary
This is a longitudinal, observational epidemiological study designed to estimate the prevalence of depression, anxiety, and behavior problems in children ages 18 months through 11 years with cystic fibrosis (CF).
Description
Integration of mental health (MH) screening and treatment into cystic fibrosis (CF) care represents over 10 years of research and clinical progress, driven by elevated rates of depression and anxiety in the International Depression Epidemiological Study, MH guidelines, and CF Foundation implementation support to screen adolescents and adults in all CF Centers. Benefits of screening include earlier identification, greater access to care, reduced stigma, and positive uptake from the CF community. However, TIDES did not include children with CF under 12 years. Depression and anxiety have increas…
Eligibility
- Age range
- 1–11 years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: 1. Child with a diagnosis of Cystic fibrosis (CF) actively followed by the CF care team at a participating site 2. Child is age 18 months thru 11 years 3. English and/or Spanish speaking 4. Parent/legal guardian willing and able to give informed consent, and for minor participants ages 7 thru 11 years able to give assent. Exclusion Criteria: * Unable or unwilling to participate in study procedures, or at Site PI discretion.
Locations (13)
- Children's Hospital of Orange CountyOrange, California
- Children's Hospital ColoradoAurora, Colorado
- Joe DiMaggioHollywood, Florida
- Nemours FoundationOrlando, Florida
- Indiana UniversityBloomington, Indiana
- Massachusetts General HospitalBoston, Massachusetts