Children's Mercy Hospital Kansas City
Recent developments in remote monitoring software can provide a proactive means for data transfer for healthcare teams to communicate with families regarding activities like weaning from feeding tubes. Children's Mercy began utilizing a mHealth technology - CHAMP App® - for tube weaning in the Fall of 2023. Research gaps remain in this population, including comparing the experiences of families who could wean with methods available prior to the innovative use of a medical team collaborating with mHealth technology. This will be a single site study with one-time naturalistic, semi-structured parent interviews of children who have attempted tube weaning in their homes with two different models of care (standard ambulatory tube weaning and with the CHAMP App pilot).
Inclusion Criteria: * Adults that are at least 18 years of age that are parent(s) of children with pediatric feeding disorder who have been seen in the Children's Mercy Interdisciplinary Feeding Clinic. * Parent/Legal Guardian of a child \< 6 years of age when they attempted tube weaning * Pediatric patients that have attempted a tube wean in the last 3 years (2022-2025) with the Interdisciplinary Feeding Clinic through either standard of care or through utilization of the CHAMP App Exclusion Criteria: * Non-English-speaking parent(s)
Qualitative research interview of parents of pediatric patients seen in an interdisciplinary feeding clinic who underwent a tube weaning program
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