AYA Access Study: An Enhanced eHealth and Chat-Bot Enabled Delivery Model for Clinical Genetic Services in Community AYA Cancer Patients

Summary

This phase III trial compares the use of a digital chatbot enabled intervention to standard remote genetic services for increasing uptake of genetic counseling and testing among adolescents and young adult (AYA) cancer patients. Genetic testing for cancer predisposition syndromes has become standard evidence-based practice and can inform enhanced screening and risk reducing measures to reduce cancer morbidity and mortality. Despite this, many AYAs are not receiving recommended genetic counseling and testing. Offering remote telehealth services can address access barriers and chatbots and texting interventions could enhance patient outcomes and reduce provider and staff time. The use of a digital chatbot enabled intervention may be equally as effective as standard remote genetic services in AYA cancer patients undergoing genetic testing.

Description

Eligibility

Age range

18+ years

Sex

All

Healthy volunteers

Yes

Interventions

• Other
  Telemedicine

  Undergo telehealth visit with genetic counselor for pretest genetic education

• Other
  Genetic Testing

  Complete standard of care genetic testing

• Other
  Telemedicine

  Undergo telehealth visit with genetic counselor for disclosure of results

• Other
  Internet-Based Intervention

  Receive access to Genetic Journey Chatbot

• Other
  Educational Intervention

  Complete digital pre-test genetic education

• Behavioral
  Patient Navigation

  Utilize chatbot to answer questions, assess barriers, and provide reminders for next steps during the testing period

• Other

Locations (230)