The RAISE Study: Adapting Psychosocial Resiliency Intervention for Parents of Adolescents and Young Adults With Cancer
Zeba Ahmad, Ph.D.
Summary
The study team aims to adapt a psychosocial intervention to reduce psychological distress among the caregiving parents of adolescents and young adults (aged 15-39) who have cancer. First, the study team will adapt an evidence-supported, group-based program for improving psychological resiliency (Stress Management and Resiliency Training - Relaxation Response Resiliency Program; SMART-3RP(E. R. Park et al., 2021)), and iteratively incorporate feedback from parents of AYA with cancer using a mixed-methods approach. Next, the study team will pilot the refined intervention to assess for preliminary indicators of feasibility, acceptability, and potential for efficacy in reducing parental distress.
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: * Self-identifying parent/guardian who provides a primary informal caregiving role in their child's cancer * Recipient of caregiving is aged between 15 and 39 years and is receiving treatment for cancer * Participant must score equal to or greater than 2 (out of a possible 10) on the National Comprehensive Cancer Network Distress Thermometer * English-speaking * Aged over 18 years Exclusion Criteria: * Having a co-parent or other household member participating in the same study * Active symptoms of psychosis or suicidal ideation that would preclude safe participation
Interventions
- BehavioralPsychosocial Intervention for Parental Caregivers of AYA with Cancer
A new adaptation of an evidence-supported intervention, the SMART-3RP program, to address psychological symptoms and promote well-being among parental caregivers of AYA with cancer.
Location
- Mass General Brigham Cancer Institute at Massachusetts General HospitalBoston, Massachusetts