Comprehensive Care for AYA: Needs Assessment Survey
Wake Forest University Health Sciences
Summary
The goal of this observational study is to assess gaps in education about exercise, sexual health, fertility, survivorship, financial issues, interpersonal relationships, and clinical trial participation among adolescents and young adults with cancer. Participants will be asked to complete a series of questionnaires.
Description
This descriptive study aims to assess current needs of adolescents and young adults with cancer. Participants who were diagnosed with cancer between the ages of of 15-39 will be asked to complete questionnaires to provide information on their cancer treatments and follow-up care, fertility preservation, clinical trial participation, emotional health and interpersonal relationships, financial burden, mental health and additional general information (health related, sexual orientation, perceived needs for support, resources, programs and activities).
Eligibility
- Age range
- 15+ years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * Individuals diagnosed with cancer between the ages of 15-39 per self-report. Participants may be enrolled at any age provided diagnosis was between ages 15-39. * Individuals who have received or are receiving cancer-directed treatment (chemotherapy, immunotherapy, surgery and/or radiation) at one of the participating centers per self-report. Exclusion Criteria: * Severe emotional distress or anxiety that would limit compliance with study requirements per self-report.
Interventions
- OtherSurvey using a questionnaire.
Questionnaires regarding cancer treatment and follow-up care, fertility preservation, clinical trial participation, general information (education on health- related topics, gender, and sexual orientation, perceived needs for resources, support areas, programs and activities.), emotional health and interpersonal relationships, financial burden and mental health status.
Locations (2)
- Atrium Health Levine CancerCharlotte, North Carolina
- Atrium Health Wake Forest Baptist Comprehensive Cancer CenterWinston-Salem, North Carolina