Adapting the SHARE for Dementia Early-Stage Dyadic Intervention: A Stage I Pilot Study With African-American Families
Benjamin Rose Institute on Aging
Summary
This project aims to culturally adapt the SHARE program for African-Americans in early-moderate stage dementia and their care partner. Upon completion of the adaptation, a pilot randomized-control trial wil be confucted to compare the adaptaed SHARE program versus usual care.
Description
Aim 1: Review SHARE for Dementia materials with an Advisory Committee (AC; 6-10 African Americans with lived experience and experts) to identify distinct needs of African American care dyads and culturally adapt SHARE using this input. Deliverables: Develop SHARE V1 Culturally tailored V1 SHARE Counselor Manual, V1 SHARE Guide for Families, and V1 SHARE Counselor training Aim 2: Conduct focus groups with African American care dyads (n=2 groups; n=10 dyads total, or until saturation) and community service provider staff (n= 2 groups; n=10, or until saturation) to identify strengths and limitati…
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * African American dyads (both the caregivers and the care-recipient, an individual with an early-stage memory impairing condition (e.g., Alzheimer's disease, vascular dementia, cognitive impairment, etc.) * Care-recipient lives at home. * The caregiver (CG) and/or the person with dementia (PWD), or symptoms of memory loss must identify as African American. * PWD must be at least 50 years old and CGs 18 or older, * Ability to speak and read English, * Experiencing signs and symptoms of mild to moderate dementia through family caregiver report on the Dementia Severity Ratin…
Interventions
- Behavioral5+1 Adapted, early-stage dyadic care planning intervention
The intervention group will receive the adapted SHARE Dyadic program, consisting of five, 60-90-minute curriculum-guided sessions with a SHARE Counselor, plus one optional family session.
- BehavioralCounseling session and printed resources
Control group participants will receive a treatment as usual equivalent: a single, standardized educational and resource session with a packet of information.
Location
- Benjamin RoseCleveland, Ohio