Benjamin Rose Institute on Aging
This project aims to culturally adapt the SHARE program for African-Americans in early-moderate stage dementia and their care partner. Upon completion of the adaptation, a pilot randomized-control trial wil be confucted to compare the adaptaed SHARE program versus usual care.
Aim 1: Review SHARE for Dementia materials with an Advisory Committee (AC; 6-10 African Americans with lived experience and experts) to identify distinct needs of African American care dyads and culturally adapt SHARE using this input. Deliverables: Develop SHARE V1 Culturally tailored V1 SHARE Counselor Manual, V1 SHARE Guide for Families, and V1 SHARE Counselor training Aim 2: Conduct focus groups with African American care dyads (n=2 groups; n=10 dyads total, or until saturation) and community service provider staff (n= 2 groups; n=10, or until saturation) to identify strengths and limitati…
Inclusion Criteria: * African American dyads (both the caregivers and the care-recipient, an individual with an early-stage memory impairing condition (e.g., Alzheimer's disease, vascular dementia, cognitive impairment, etc.) * Care-recipient lives at home. * The caregiver (CG) and/or the person with dementia (PWD), or symptoms of memory loss must identify as African American. * PWD must be at least 50 years old and CGs 18 or older, * Ability to speak and read English, * Experiencing signs and symptoms of mild to moderate dementia through family caregiver report on the Dementia Severity Ratin…
The intervention group will receive the adapted SHARE Dyadic program, consisting of five, 60-90-minute curriculum-guided sessions with a SHARE Counselor, plus one optional family session.
Control group participants will receive a treatment as usual equivalent: a single, standardized educational and resource session with a packet of information.
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