Registry Trial and Needs Assessment of Patients With Young-onset Lung Cancer: Impact of a Dedicated Care Program on Patient Experience and Outcomes
M.D. Anderson Cancer Center
Summary
The goal of this research study is to learn about: The effect of enrolling in the YOLC program on patient satisfaction with care provided, The needs of patients younger than 50 with lung cancer and their family, and The impact of participating in peer support networks on these patients.
Description
Primary Objectives: 1. To determine whether enrollment in a dedicated program (YOLC) results in improved patient satisfaction with care provided. 2. To characterize the distinct needs of patients under age 50 diagnosed with lung cancer as well as those of their families, and how these needs may change over time throughout the care pathway. 3. To evaluate the impact of participation in peer support networks and whether it has a beneficial effect on the primary and secondary endpoints. Secondary Objectives: 1. To determine whether enrollment in a dedicated program (YOLC) results in improved p…
Eligibility
- Age range
- 18–50 years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * Age greater than 18 years and under 50 years * Histologic confirmation of NSCLC * Able to complete an English-language survey independently or with the assistance of a native-language interpreter * Pregnant women- may be enrolled due to age range of subjects. (Low risk) Exclusion Criteria: * Medical, psychiatric, cognitive, or other conditions that compromise the patient's ability to understand the patient information, to give informed consent, to comply with the study protocol or to complete the study. * The following special patient population will be excluded from s…
Interventions
- OtherSurvey
Participants will complete an intake survey and repeat surveys at the following time points: * Baseline * 3 months * 6 months * 9 months * 12 months * 18 months * 24 months * 36 months * 48 months * 60 months
Location
- The University of Texas M. D. Anderson Cancer CenterHouston, Texas