Life at 100.4: An Immersive Social Virtual Reality Education Tool for Adolescent and Young Adult Cancer Patients and Caregivers
Yale University
Summary
The purpose of this study is to design and Beta test the Life at 100.4, an immersive social virtual reality education tool, with an anticipated 5 patient-caregiver-provider triads.Patients at Yale Pediatric Hematology and Oncology with a new oncologic diagnosis and their caregivers will be eligible for enrollment. Investigators will determine the feasibility and acceptability of implementing Life at 100.4 using validated measures.
Description
Febrile neutropenia, a condition marked by fever and low numbers of neutrophils, is the most commonly encountered complication of childhood cancer treatment. The mortality of untreated febrile neutropenia is as high as 30%. Delay of appropriate care and increased time to antibiotics are associated with increased mortality. Reasons for delay to care include a lack of understanding about the seriousness of febrile neutropenia or difficulty navigating the healthcare system. Effective, and evidence-based educational experiences can reduce morbidity and mortality rates related to febrile neutropeni…
Eligibility
- Age range
- 13–39 years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * Newly diagnosed with a malignancy or bone marrow failure condition * Planned to receive chemotherapy and receive a central line Exclusion Criteria: * Medical contraindication to virtual reality including head wounds and history of seizure with flashing lights * No plan to receive chemotherapy
Interventions
- BehavioralLife at 100.4
An Immersive Social Virtual Reality Education Tool, participation up to 2 hours
Location
- Pediatric Hematology/Oncology Clinic in Smilow Cancer HospitalNew Haven, Connecticut