Improving Information Sharing Between Family Caregivers and Home Care Aides Caring for Persons Living With ADRD
Johns Hopkins Bloomberg School of Public Health
Summary
This study will assess the feasibility and acceptability of delivering a home care role and preference guide to up to 50 family caregivers and home care aides of persons living with disability for the purpose of identifying roles between family caregivers and home care aides.
Description
This study will assess the feasibility and acceptability of delivering a home care role and preference guide to family caregivers and home care aides of persons living with disability for the purpose of identifying roles between family caregivers and home care aides, as well as preliminary effects on older adult social engagement, caregiver distress, continuity, and feelings of being overwhelmed, family caregiver/direct care worker preparedness, relational coordination, and service satisfaction. The intervention will involve delivering the home care role and preference guide to up to 50 family…
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: 1. Home care agency aide: * English speaking, * home care aides, personal care aides, or personal care aides, providing services to older adults with ADRD. 2. Family or unpaid caregiver eligible for the study if: * 18 years and older * English speaking * hear well enough to communicate by telephone * identify themselves as the primary family member or unpaid (friend/companion) caregiver Exclusion Criteria: 1. Home care aides are ineligible if: * non-English speaking * certified nursing assistants, nursing assistant, home health aides, or medica…
Interventions
- OtherGRACE
GRACE- Guide for Role Awareness and Care Engagement is a role and preference guide designed to improve information sharing and clarify role expectations between family caregivers and home care aides of older adults. This guide will outline the various domains of providing care services and preferences for older adults such as daily routine and preferred activities. The intervention will be delivered in-person to the family caregiver and home care aide at the care recipient's home.
Location
- Johns Hopkins UniversityBaltimore, Maryland