Developing and Refining an Intervention to Assess and Address Health-Related Social Needs Among Families of Children With Cancer
Wake Forest University Health Sciences
Summary
The purpose of this study is to design Community Enhancing Resources for Childhood cAncer support (CERCA) and refine intervention procedures to target Health-related Social Needs (HRSN) in families of children with cancer. CERCA will leverage existing community resources and create partnerships that will lead to sustainable outcomes. The hypothesis is that through context-driven co-design and community-engaged research methods, the study team will develop an acceptable intervention to target unmet HRSN in families of children with cancer.
Description
The first goal of this study is to identify unmet health-related social needs (HRSN) faced by families undergoing pediatric cancer care and identify health system and community resources to address these unmet HRSN. The second goal of this study is to conduct a context assessment of the current processes related to HRSN screening and referrals in the pediatric oncology clinic via individual interviews and clinical workflow observations with healthcare professionals and clinical staff in the pediatric oncology clinic. Participants of this study will include caregivers of children in cancer car…
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: Caregivers of Children with Cancer * A caregiver of a child (\<18 years old) actively receiving treatment or recently completed treatment (within the past 1 year prior to enrollment) for any type of cancer. A caregiver is defined as any individual involved in bringing the child to the clinic or providing care at home, the hospital, or other healthcare setting (e.g., parents, guardians, siblings, etc.). * Ability to understand IRB-approved information sheet and willingness to provide consent. * Age ≥ 18 years at the time of consent. * Ability to understand the English and/…
Interventions
- OtherCommunity Enhancing Resources for Childhood cAncer support (CERCA)
CERCA is a context-driven, co-designed intervention leveraging community resources to address unmet Health-related Social Needs (HRSN) among families of children with cancer. This study will observe the process of intervention development and assess acceptability and feasibility.
Location
- Atrium Health Wake Forest Baptist Comprehensive Cancer CenterWinston-Salem, North Carolina