From Screening to Support: A Multi-Method Analysis of HRSN Integration in Cancer Care
Thomas Jefferson University
Summary
This observational study aims to identify the factors that influence whether cancer patients accept or decline supportive care services after screening positive for health-related social needs (HRSNs) at the Sidney Kimmel Comprehensive Cancer Center. The study focuses on adult oncology patients who previously reported at least one HRSN-such as transportation, food, housing, or utility needs-but declined assistance when it was offered. The main questions it aims to answer are: * What factors shape cancer patients' intentions to use supportive care services for HRSNs? * Why do patients who screen positive for HRSNs choose not to accept help offered by the healthcare system? Participants will: * Complete a one-time electronic survey delivered via MyChart or email. * Optionally participate in a semi-structured Zoom interview (for a subset of 20-30 survey respondents) to explore decision-making in greater depth.
Description
This is a cross-sectional observational study. There will be 500 participants for MyChart survey and 20 participants for semi-structured interviews. Surveys will be distributed via MyChart and email and will take about 10 minutes to complete. The main purpose of this study is to understand why SKCCC participants are not seeking support for their corresponding HRSNs from the healthcare system. The hypothesis is that a range of factors are contributing to SKCCC patients' decline of resources to address risks identified in HRSN screening potentially inclusive of mistrust of healthcare systems, pe…
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- No
Inclusion Criteria: * Individuals must meet all of the following inclusion criteria in order to be eligible to participate in the study: * Provide informed consent via check box for survey * Provide verbal consent via Zoom for interview * Must be able to read and understand English * Willing to comply with all study procedures and be available for the duration of the study * Patients with existing HRSN data in their EHR that answere4d yes to risk in at least one domain and no to wanting help/follow up Exclusion Criteria: * An individual who meets any of the following criteria wil…
Interventions
- OtherSurvey
Participants complete a one-time electronic survey to assess factors influencing the decision to decline assistance for identified Health-Related Social Needs (HRSNs). The survey includes questions related to transportation access, food insecurity, housing instability, and utility needs. Survey completion takes approximately 10 minutes.
- OtherInterview
Interviews will be semi-structured and will be offered to 20 participants who have completed the survey and meet eligibility criteria. Interviews will be conducted via a Zoom. Zoom will create a transcription of the interview which will be saved in a secure encrypted space, no video will be saved.
Location
- Sidney Kimmel Cancer Center at Thomas Jefferson UniversityPhiladelphia, Pennsylvania