Mayo Clinic
This study may help doctors determine where patients and caregivers may need more support and identify ways to maintain patient and caregiver dignity while undergoing treatment.
PRIMARY OBJECTIVE: I. Change in patient dignity impact scale scores prior to and after completion of patient and caregiver recordings. OUTLINE: This is an observational study. Patients and their caregivers complete an interview and survey on study. Patients also have their medical records reviewed on study.
Inclusion Criteria: * Age ≥ 18 years * Diagnosis of chronic or progressive illness with a primary caregiver, should patient wish to involve one * Willing and able to participate in a semi-structured recording lasting approximately 60 minutes. Dyad recordings conducted for participants who elect to involve a caregiver * Willing and able to participate in a single follow-up recording. Dyad follow up recordings conducted for participants who elect to involve a caregiver Exclusion Criteria: * Uncontrolled and/or intercurrent illness which limits participation in study recording * Vulnerable pop…
Non-interventional study
Arctuva estimate
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