Voices: Messages of Wisdom and Hope in the Face of Illness
Mayo Clinic
Summary
This study may help doctors determine where patients and caregivers may need more support and identify ways to maintain patient and caregiver dignity while undergoing treatment.
Description
PRIMARY OBJECTIVE: I. Change in patient dignity impact scale scores prior to and after completion of patient and caregiver recordings. OUTLINE: This is an observational study. Patients and their caregivers complete an interview and survey on study. Patients also have their medical records reviewed on study.
Eligibility
- Age range
- 18+ years
- Sex
- All
- Healthy volunteers
- Yes
Inclusion Criteria: * Age ≥ 18 years * Diagnosis of chronic or progressive illness with a primary caregiver, should patient wish to involve one * Willing and able to participate in a semi-structured recording lasting approximately 60 minutes. Dyad recordings conducted for participants who elect to involve a caregiver * Willing and able to participate in a single follow-up recording. Dyad follow up recordings conducted for participants who elect to involve a caregiver Exclusion Criteria: * Uncontrolled and/or intercurrent illness which limits participation in study recording * Vulnerable pop…
Interventions
- OtherNon-Interventional Study
Non-interventional study
Location
- Mayo Clinic in RochesterRochester, Minnesota